The Kian Jordan Rose Foundation (KJRF) is a 501(c)3 non-profit charitable organization.Our mission is to raise awareness and funds to support research conducted at the University of California, San Francisco Pediatric Bone Marrow Transplant Unit for Hurler’s Syndrome.

Our vision for Kian and the many children who have Hurler’s Syndrome is to find a cure, and help those children have a healthy and productive life. Without a cure for this syndrome, many children like Kian will continue to have medical obstacles to overcome throughout their lifetime.

In 2008, the Kian Jordan Rose Foundation was formed.